Jon Organ, 57 year old, family man, from the south of England was diagnosed with stage 4 laryngeal cancer in late 2022. After having to have a laryngectomy and enduring several tough weeks of chemotherapy and radiotherapy follow up treatment, Jon was fitted with stoma. It hasn’t been the easiest of journey for Jon and
I wake at 6 am load my nebuliser mask up and sit for 1.5 hours to clear my trachea from the night’s dryness. This allows me to breath. Once done, I then moisturise a lot on my head, face, and neck. I change my base plate that holds my Heat Moisture Exchange (HME) on to
My name is Jon Organ. I’m a 57 year old builder that runs a building company in the south of England as well as a building consultancy company dealing with health and safety. I am very much a family man. I married my wonderful wife Nicky 36 years ago and between us we have raised
A series of short poems by Jon Organ, shared with openness about his experience and his inner thoughts during his throat cancer treatment. Follow Jon on Instagram: @jonscancerlarydiary Honest thoughts about my throat cancer treatment This corridor of hope beckons ahead. Lungs puffed with air, head full of dread. Elongated lights our landing strip high.
In April 2020, Gerard Dillon, a professional singer from Liverpool, noticed changes in his voice as it had started to sound hoarse. In his line of business, he was well aware that something wasn’t right, and knew that it was important to get it checked, so made an appointment with his doctor. He had never
In 2011, Paul Barr from Coventry, started to get a sore throat, but despite taking over the counter throat lozenges from his local pharmacy, the pain was not receding. After six weeks of his sore throat not going away, he finally went to his doctor. The doctor diagnosed him as having ‘Laryngitis’, a general sore
A grandmother who is set to abseil down ‘Spinnaker Tower’ in Portsmouth in September in honour of fellow throat cancer survivors has opened up about the lack of awareness surrounding HPV-related throat cancers and also the impact both the disease and diagnosis had on her. Victoria Workman, 59, told how she was grilled with personal
Niki Shaw, shares with honesty, her personal journey with a throat cancer diagnosis during COVID. From dealing with delayed appointments to harrowing restrictions, that included having to be separated from her husband for six weeks and medical staff who couldn’t support her as they would have normally been able or liked to do as before.
Throat cancer can change many lives in an instant, quickly altering family and relationship dynamics. Caring for someone with throat cancer can often be a frustrating and isolating experience, particularly if the carer doesn’t have a good support network. Dr Elaine Emmerson, who is leading a groundbreaking treatment for those who suffer from permanent dry
A brave father has spoken candidly on how the aftermath of his throat cancer treatment impacted his family during the Christmas holidays. Alan Johnston, 55, said he is still feeling the effects almost four years on from his harsh treatment, which included 30 treatments of radiotherapy and two chemotherapy infusions. Recalling his first Christmas post
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